its been a good start, the publicity for the challenge and getting awareness of iih is going brill, its been on itv news, in papers and going in magazines
i had a interview and photographs done for my local news paper.
im being really good and eating healthy, been walking as much as possible to try burn some fat off, been feeling really tired this wk.
About Me
- heidi
- This will be the story of my life with ih, i will start from the begining when i was first diagnosed until present day. I am taking part in the £s 4 lbs challenge to help raise money and awareness of ih while loosing my extra lbs. I will be posting updates on my challenge progress as well as how ih is effecting me
Thursday, 31 March 2011
Monday, 28 March 2011
the challenge has started
today is the first day of the pounds 4 lbs challenge.
my weight today is 12 stone 4 lbs with bmi of 30,
i always use the machine in boots bacause it gives u a print out so it easy to keep track, it also tells me my ideal weight for my height, which i found very funny cos it said 8 stone 2lbs to 10 stone 3lbs.
well i dont think i will ever get down to 8 st 2, unless i chop myself in half lol,
so i going to aim to get down to 10 stone, i dont expect to get to that before the challenge ends on 28 november but im going to try and get as close to that as possible.
i have started today as i mean to go on, i have down sized my dinner portions (they were getting rather large lol) to a more normal amount, and i have cut out snacking in between meals.
i have also been busy contacting nottingham evening post and bbc news to get more publicity for our challenge and to raise awareness for iih,
my weight today is 12 stone 4 lbs with bmi of 30,
i always use the machine in boots bacause it gives u a print out so it easy to keep track, it also tells me my ideal weight for my height, which i found very funny cos it said 8 stone 2lbs to 10 stone 3lbs.
well i dont think i will ever get down to 8 st 2, unless i chop myself in half lol,
so i going to aim to get down to 10 stone, i dont expect to get to that before the challenge ends on 28 november but im going to try and get as close to that as possible.
i have started today as i mean to go on, i have down sized my dinner portions (they were getting rather large lol) to a more normal amount, and i have cut out snacking in between meals.
i have also been busy contacting nottingham evening post and bbc news to get more publicity for our challenge and to raise awareness for iih,
Saturday, 26 March 2011
from 2003 till now
Just to bring everything upto date, i was off all medication and sympton free for nearly 5 years, i had a few headaches in those years but lps showed pressure was ok. I thought i was cured of ih, the doctors had said it could just go away.
But in september 2008 i was getting headaches more often but just put it down to stress and having 2 young children.
I was admitted to hospital in october 08, i had kidney stones and pneumonia. my head was so painfull while in hospital but put it down to the lighting, but a week after i had been discharged from hospital my head was even worse, so i went to my gp and told him i needed refering back to neuro and fast.
So thats when my ih which i thought had gone, came back with a vengenace, so i was put back on meds till dec 09, then my eye doctor took me off them (the reason they did that is still unclear to me and my neuro). i was ok for a few months but then towards the end of 2010 my headaches were starting to come back, i know it was my pressure rising even tho my neuro thought it was stress, but i had an lp in jan this year and my pressure was up again, so back on medication.
that brings my story upto present day,
But in september 2008 i was getting headaches more often but just put it down to stress and having 2 young children.
I was admitted to hospital in october 08, i had kidney stones and pneumonia. my head was so painfull while in hospital but put it down to the lighting, but a week after i had been discharged from hospital my head was even worse, so i went to my gp and told him i needed refering back to neuro and fast.
So thats when my ih which i thought had gone, came back with a vengenace, so i was put back on meds till dec 09, then my eye doctor took me off them (the reason they did that is still unclear to me and my neuro). i was ok for a few months but then towards the end of 2010 my headaches were starting to come back, i know it was my pressure rising even tho my neuro thought it was stress, but i had an lp in jan this year and my pressure was up again, so back on medication.
that brings my story upto present day,
Friday, 25 March 2011
the begining
I was diagnosed with idiopathic intracranial hypertension in jan 2001.
i had woken up 1 morning in late october 1999 unable to move my head, i called the doctor out who said i had trapped a nerve. I was given pain medication and was told it be ok after a few days, well that was the start of my journey to a diagnosis. I was constant pain with my neck and shoulders for the next 2 months, i went to my own gp and emergency doctors several times being told different things each time, its a trapped nerve, its muscle spasms, i had slept in a draught. I was given a variety of different pain meds and muscle relaxents but none would ease the pain. The only way i could get any releif from the pain was laying in a hot bath with the water upto my chin, i was doing this several times a day. I hardly ate because i was in so much pain.
By mid december 1999 i was starting to have problems with noises in my ears, doctors said it was an ear infection so i got more meds. The week before christmas things went from bad to worse, not only was i still in pain, had the strange noises in my ears but my sight was all strange, the only way to describe it is to imagine starring at the sun and only seeing shadows out of the brightness, so u guessed of to docs i went, all my gp did was check ears and tell me it was a reaction to the strong pain meds i was taking, so they gave me stronger 1s.
After over 2 months of pain i couldnt take anymore, my family didnt know how to help, so on new years day i phoned nhs direct, once i explained all my symptons they called an ambulance for me and i was rushed to hospital. The docs in a&e first thought i was drunk or on drugs because my pupils were fully dialated but after they looked closer into my eyes they called for a nerologist.
i was sent upto a ward where they did my first lumbar pucnture (lp), they thought i had meningitus, but once the needle was in place all i heard from the docs was "o so thats why you have been in so much pain" my pressure was through the roof.
Thats how i was finally diagnosed with iih, i had numerous lps (too many to remember) but wasnt helping my vision as the csf was building back up so quick.
i had an optic nerve fenistration on 1 eye to save my vision, altho i am left with impaired vision i got back more than the doctors expected, and was on meds uptil late 2003 (i think)
Idiopathic intracranial hypertension is a serious neurological disorder where the cerebrospinal fluid (csf) builds up within the skull, causing pressure which can lead to severe headaches, vision loss, blindness and alters your life, there is currently no cure for this. Treatments vary from meds to surgery.
Not many people have heard of this illness, and not many doctors know enough about it, that is why im doing this blog, i want to help raise awareness of iih,
i had woken up 1 morning in late october 1999 unable to move my head, i called the doctor out who said i had trapped a nerve. I was given pain medication and was told it be ok after a few days, well that was the start of my journey to a diagnosis. I was constant pain with my neck and shoulders for the next 2 months, i went to my own gp and emergency doctors several times being told different things each time, its a trapped nerve, its muscle spasms, i had slept in a draught. I was given a variety of different pain meds and muscle relaxents but none would ease the pain. The only way i could get any releif from the pain was laying in a hot bath with the water upto my chin, i was doing this several times a day. I hardly ate because i was in so much pain.
By mid december 1999 i was starting to have problems with noises in my ears, doctors said it was an ear infection so i got more meds. The week before christmas things went from bad to worse, not only was i still in pain, had the strange noises in my ears but my sight was all strange, the only way to describe it is to imagine starring at the sun and only seeing shadows out of the brightness, so u guessed of to docs i went, all my gp did was check ears and tell me it was a reaction to the strong pain meds i was taking, so they gave me stronger 1s.
After over 2 months of pain i couldnt take anymore, my family didnt know how to help, so on new years day i phoned nhs direct, once i explained all my symptons they called an ambulance for me and i was rushed to hospital. The docs in a&e first thought i was drunk or on drugs because my pupils were fully dialated but after they looked closer into my eyes they called for a nerologist.
i was sent upto a ward where they did my first lumbar pucnture (lp), they thought i had meningitus, but once the needle was in place all i heard from the docs was "o so thats why you have been in so much pain" my pressure was through the roof.
Thats how i was finally diagnosed with iih, i had numerous lps (too many to remember) but wasnt helping my vision as the csf was building back up so quick.
i had an optic nerve fenistration on 1 eye to save my vision, altho i am left with impaired vision i got back more than the doctors expected, and was on meds uptil late 2003 (i think)
Idiopathic intracranial hypertension is a serious neurological disorder where the cerebrospinal fluid (csf) builds up within the skull, causing pressure which can lead to severe headaches, vision loss, blindness and alters your life, there is currently no cure for this. Treatments vary from meds to surgery.
Not many people have heard of this illness, and not many doctors know enough about it, that is why im doing this blog, i want to help raise awareness of iih,
Subscribe to:
Comments (Atom)